I’m finally back in Seattle after a 3 day baseball trip to Bremerton, WA. Fun. Tim is great. Working on the bbq party for tomorrow.
I’m in extreme pain for some reason. Have a call in to MD Anderson to try to get an appointment when I’m in Houston because I have the following:
Swollen lymph nodes
Major muscle pain in neck and collarbone
Some night sweats
Vein across chest was about 4 inches (it’s blue and stands out some) is now showing from one shoulder across chest to the other shoulder. It looks weird. I never had it look like that before. It started becoming blue right at the spot of where my central line used to be last year. It worried my charge nurse in San Antonio, so I’m wondering now.
I’m not liking it. The nurse said the pain could be from the steroid taper, but in fact I had actually upped my dose from 4mg a day to 8mg a day this past week.
The pain has been so severe, I’ve been taking Vicodin and muscle relaxers. Makes for a fun_debu, but a high one. Not acceptable on a daily basis.
I leave Seattle on the 25th. One week. I’m really sad, but am trying not to let it bother me. It does. I miss Zoe, but know I will miss Tim (and Seattle) so incredibly much. As Tim Gunn on Project Runway says we are going to try to “make it work.” Long distance isn’t always easy, but he’s special and amazing.
My sweetie and I rode on the Bremerton ferry this morning. A nice, cloudy and cool Seattle day. Perfect weather when you are with someone you love. Actually any weather is perfect, but the coolness makes for a wonderful day.
I can do this. Regardless. I just hope they can fix me.
Your assignment today is to say hi. I’ve been missing you all bunches.