A Black And Blue Mess

Still uninsured. Still a mess.

Still have weird scar tissue on my lower back. I think it is in the spot where they do my left bone marrow biopsies. I’ve lost so much weight you can actually see it poking up.

I am bruising like crazy too. It worries me a little bit because that is a symptom of leukemia. I have a five inch bruise on my stomach. I took a picture but it looked too gross to post.

I was sort of glad to read about the marrow foundation running out of funding. That means many people responded.

Pretty remarkable story!! Doctors Say Marrow Transplant May Have Cured AIDS.

 

BERLIN – An American man who suffered from AIDS appears to have been cured of the disease 20 months after receiving a targeted bone marrow transplant normally used to fight leukemia, his doctors said.

While researchers – and the doctors themselves – caution that the case might be no more than a fluke, others say it may inspire a greater interest in gene therapy to fight the disease that claims 2 million lives each year. The virus has infected 33 million people worldwide.

Dr. Gero Huetter said Wedneday his 42-year-old patient, an American living in Berlin who was not identified, had been infected with the AIDS virus for more than a decade. But 20 months after undergoing a transplant of genetically selected bone marrow, he no longer shows signs of carrying the virus.

“We waited every day for a bad reading,” Huetter said.

It has not come. Researchers at Berlin’s Charite hospital and medical school say tests on his bone marrow, blood and other organ tissues have all been clean.

However, Dr. Andrew Badley, director of the HIV and immunology research lab at the Mayo Clinic in Rochester, Minn., said those tests have probably not been extensive enough.

“A lot more scrutiny from a lot of different biological samples would be required to say it’s not present,” Badley said.

Marrow Awareness Month – Join Online Free!

Thanks Rachel Y

Save a life. Sign up on the National Marrow Donor Program Registry.

Join Now


You can join the donor Registry online today at no cost to you. In honor of Marrow Awareness month, Otsuka America Pharmaceutical, Inc., has provided an unrestricted grant to cover the cost of tissue-typing tests for potential donors who join online.

 

Join online for free while funding remains. Usually it costs $52 to tissue type the donor.

It’s easy to join:
Step 1. Confirm you meet basic donor guidelines.
Step 2. Complete the online registration form. This step will take about 30 minutes. To join for free, you must complete your online registration before November 30 or while funding remains.
Step 3. Use the kit mailed to you to get a swab of cheek cells. These will be used to test for your tissue type.

Seriously, it’s as easy as a cheek swab. If any of my readers end up donating stem cells to a patient, I’ll come hold your hand or send you a pie. You never know. You might save an adorkable girl’s life one day.

Mom’s Little Alarm

Ok. During the week, Zoe is a pain to get up and get moving. I usually tickle her or breath my stink dragon breath on her thereby melting her face.

But on the weekends, she’s always up at the crack o’ crack.

This afternoon we have a soccer game at 12:00pm. So Zoe walks in at 8:15 and says, “Hey mom, you still have two hours to sleep. Okay, bye bye.”

Went to dinner after soccer practice and took this picture. Not the most flattering to me as I have zero makeup on, but my hair is getting longer (touching my shoulders) and we had a fun time.

 

I’ve been having some problems breathing lately. My insurance is still messed up and hasn’t kicked in yet (long story) so I haven’t seen my doc. I also have some kind of knot or scar tissue over my left bone marrow biopsy site. It really hurts. I’m a vicodin kind of girl lately. Still sleeping a lot, but overall I feel much much better than I did a few weeks ago.

I can do this. But why is it still so darn hot here?? Isn’t it November already?

Your assignment, enjoy the outdoors. Even if it is freezing or raining, just get up and get out.